One dollar bills

The Muscular Dystrophy Association’s Payments to the IAFF Just Hit $7 Million

Despina Karras
3 min readJan 7, 2024

The International Association of Fire Fighters’ LM-2 filings for 2022–2023 were just released, and in them were four payments from the Muscular Dystrophy Association totaling $650,000.

IAFF’s 2022–23 LM-2 filing showing 4 payments made from MDA totaling $650,000. Two payments were made in 2022 totaling $325,000 and two were made in 2023 totaling $325,000.

That’s $650,000 in your donations that MDA is giving to the IAFF for, well…after three years they still refuse to tell us why they’re making these payments.

Let’s take a look at the IAFF’s LM-2 filings for 2021–2022.

IAFF’S 2021–22 LM-2 filing showing three payments made from MDA totaling $487,500. One payment was made in 2021 for $162,500. Two payments were made in 2022 totaling $325,000.

If we add up the payments for 2022 alone, we get a total of $650,000 for the calendar year.

Now take a look at MDA’s 2022 990 tax filing, specifically at “Grants and similar amounts paid” in the expenses section.

MDA’s 2022 990 tax filing showing in 2021 they awarded $13,666,745 in grants and in 2022 they awarded $13,032,682.

In 2021, MDA spent $13,666,745 on research grants. In 2022, they spent $13,032,682. That’s $634,063 less.

MDA paid $650,000 to the IAFF, yet cut research funding by $634,063.

MDA previously claimed that one minute of research cost $70, so that means over 150 hours of research were cut. But the IAFF continued getting their paychecks.

After a pause in 2020, MDA’s payments to the IAFF have started to climb again. And in 2023 MDA hit a milestone — they gave over $7 million to the IAFF ($7,067,500 to be exact).

Donations from MDA to the IAFF. There is a decrease from 2015 to 2016, then a sharp increase in 2017 that remained steady through 2019. In 2020 the amount was $0. It was under $200,000 in 2021 and then sharply rose in 2022.

Think of all the people that $7 million could have helped. That’s 1,683 hours of research. Or 282,700 flu shots. Or 8,834 kids going to camp.

That’s money that could have been spent on MDA Care Center visits, which are no longer paid for by MDA.

That’s money that could have gone to purchasing or repairing wheelchairs, which MDA no longer funds.

That’s money that could have helped facilitate support groups and loan closets, which MDA no longer offers.

And this entire time, while MDA pays the IAFF and payments are again increasing, the amount they’re spending on research is decreasing.

Grants Given by MDA. In 2013 they were nearly $40 million. There has been a decrease every year since and in 2022 the amount was under $14 million.

But never fear — MDA executives are still making money. In fact, salaries and compensation account for more of MDA’s expenses than research grants do.

MDA’s Expenses: Research vs. Salaries. Both research and salaries have gone down since 2013; however, salaries have been considerably higher every year, and salaries/employee compensation went up in 2022.

Is this how MDA provides hope and support to those with neuromuscular diseases? Is this how they empower us?

Please consider this before donating to MDA.

All of the information provided can be found on the United States Department of Labor Office of Labor-Management Standards site and the Muscular Dystrophy Association’s site.

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Despina Karras
Despina Karras

Written by Despina Karras

Writer, meteorologist, disability rights advocate.

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